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Inauguration of the Normandy Stroke Observatory and launch of the Paul Bennetot cohort

by Dominique Letourneau
Theme: research and innovation

The University Hospital of Caen Normandy and the University of Caen Normandy, in collaboration with the Paul Bennetot Foundation – Matmut Group
and the Normandy region, have just dedicated the Normandy Stroke Observatory.

This observatory strives for it target to monitor the future of patients and their family members in the long term. To do this, will be a study executed from the cohort Paul Bennetot, cohort with 800 patients for 3 years.

the accident
Stroke is the leading cause of death in France
women and the third among men. Every year, around
130,000 patients are admitted to hospital for a stroke (including a cerebral infarction)
transient, AIT). At least 50% of survivors retain a disability
and almost everyone needs long-term care.
However, very few studies currently carried out in France have been evaluated
long-term consequences of a stroke at population level

Professor Emmanuel Touzé, head of
the neurovascular unit of CHU de Caen Normandie, founded in 2017
the Normandy Stroke Observatory, funded by the Paul Bennetot Foundation.
From 2019, this population screening will make it possible to measure the impact
stroke population, to comprehensive and
representative organizations in Normandy for the quality of
patient care and adjustment of health policy.
Approximately 800 patients will be affected by this study each year.


is the result of occlusion or breakage of a vessel. Same
if it is very related to aging (50% of patients have at least 75
year), it occurs in 25% of cases in persons younger than 65 years.

At least 50% of survivors retain a disability and
almost all patients require long-term care
These elements make a stroke a chronic pathology
is a heavy burden on patients (depression, fatigue,
disability, job loss), for their loved ones (moral support, financial support,
help with daily activities) and for society.

the impact
medical-economic stroke is therefore also important
well in the initial phase than in the chronic phase. Nevertheless there is very little data on the impact of socio-economic and geographical inequalities on the prognosis of stroke
(risk, acute mortality, access to care) at population level
representative, who is nonetheless indispensable for guidance
health policy.

the challenge
of the observatory is to identify all cases of stroke that occur
people staying on the territory of Caen-Normandie Métropole
(basic), regardless of where they are at that moment

The observatory will have to demonstrate
completeness of patient identification in order to produce
epidemiological population data that can be used. this one
identification will be ensured by crossing multiple sources
prospective and retrospective information. The method used
relies on approaches that are used and validated in other registers


The observatory wants to become a population register in 2020,
that is to say, recognized and labeled by the evaluation committee of
registers (established by Public Health France, Inserm and the Institute
National Cancer Institute, INCa).

The study will be done from the Paul Bennetot cohort (admission of 800 patients per year for 3 years).
The goal is to better understand, combat and prevent
consequences of disability after stroke in the long term by assessing
impact of stroke and disability on the quality of life of patients
and provide their family members and essential data to the
planning for prevention and care and
so adjust the care of the patients.

especially looking for sources of inequality in this
population, the observatory and the cohort will make it possible to obtain
essential data for planning prevention and care
acute and chronic conditions to improve the quality of care

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