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My five-year-old son has dementia



A mother told by HEARTBROKEN how her five-year-old boy suffers from dementia – a disease that is normally associated with elderly people.

George Young, from Kenilworth, Warwickshire, has Batten's disease.

    George, pictured with him, Mom Claire

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George, pictured with him, Mom Claire

It is a very rare disease and one of the symptoms is dementia.

He has lost all his ability to say his first words – "mama" and "papa", his mother Claire told the Independent.

Claire, a lawyer, said, "I was not aware of childhood dementia, I did not know it could happen to the little ones, and you do not expect that it will happen to any of you.

"He normally developed like a little boy, he beat all his important milestones."

    George suffers from a form of dementia

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George suffers from a form of dementia
    He loses his sight

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He loses his sight
Official trailer for the movie Love Kennedy, which follows the story of a girl with terminal Batten disease

She told Birmingham Live: "People always associate dementia with the elderly.When you place it in the context of a toddler, it seems utterly heartbreaking."

She told how George is losing his sight because he has lost his mobility.

He was diagnosed when he was three and must now be lifted to bed in a wheelchair and carried through the tube.

Claire said, "I feel that his vision is slipping away, so that sounds and smells become more important to him."

    George, pictured with his mother

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George, pictured with his mother

She continued: "He is still a fan of Peppa Pig and when he hears the music, he gets excited and knows he's on.

"He will be happy to watch episode after the episode, but I think it's more about the sounds than about full involvement.

"I can walk towards him calmly and he will not respond, but as soon as he smells my perfume, he knows I'm there."

    George, pictured with his mother

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George, pictured with his mother

Claire wrote on a JustGiving page: "Because the condition is degenerative, George loses his daily basic functions, including walking to school, talking to grandmother, seeing how his favorite football team wins the competition and eats Sunday lunch.

"There is currently no treatment for the condition, therefore our handsome, sweet boy will heartbreaking his battle against it before he is old enough to experience life and all its possibilities to the full."

    Claire makes memories with her boy

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Claire makes memories with her boy

She explained how she sets up a bucket list for him – things they had done together.

Up until now he has already had a helicopter flight, ridden in a sports car, on the roller coaster on the Peppa Pig world and met soldiers at Buckingham Palace.

What is Batten disease?

Late Infantile Batten Disease is a neurological disorder that occurs in children between 2 and 4 years old and is an early onset of Batten's disease.

disease is a disorder of the nervous system that results in death and usually begins in childhood.

According to NINDS (National Institute of Neurological Disorders and Stroke), the condition usually appears in children aged 5 to 10 years, who may have previously been completely healthy.

There are many forms of the disease, but late Infantile Batten disease begins between the ages of 2 and 4.

The first signs of the disease are loss of muscle coordination and seizures. According to NINDS, this form is rapidly progressing and ends in death between 8 and 12 years old.

Batten disease is very rare: it occurs in five or six births in the UK every year, while research finds that they are more common in Finland, Sweden, other parts of Northern Europe and Canada.

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