Migraine is the third most common disease in the world: funding for treatment is crucial



Besides severe headaches, I get dizziness, hallucinations, dissociation, loss of memory, brain tone, confused speech and sensitivity to sound, light and weather (photo: Ella Byworth / Metro.co.uk)

Today is the start of the Migraine Awareness Week, and ones one of the 8.5 million Britons with the conditionI am happy to discuss the impact.

miniature for item ID 7897138Forming new habits is just as important as nutrition and exercise if you want to lose weight

The World Health Organization is serious about it migraine as debilitating as dementia, psychosis and quadriplegia. I have therefore spent at least 500 days in bed.

That lost time is just one reason why I am both hopeful and frustrated about the current treatment landscape and why I believe that awareness can not be a substitute for financing.

There is promising new treatment on the horizon, subject to approval for use in the NHS. Aimovig, also known as erenumab represents the first significant advance in migraine medication for 20 years and is the only medicine specifically designed to prevent this.

It could be halve the migraine days of some patients and because it is not a re-used drug, these may have fewer side effects. As someone who has received medication that has been developed for angina, high blood pressure and seizures to control my migraine, I am enthusiastic about this.

Meanwhile, good causes like Migraine Trust are invaluable to promote research and support the one in seven people who live with it. Some patients also receive excellent care – I am fortunate to be one of them now.

On the other hand, migraine is the third most common disease in the world, but there is no cure, no conclusive cause and no definitive test to make a diagnosis. Add to this the lack of understanding of the public, which extends to the work, and there is still so much to do.

Compared to its socio-economic impact, migraine is one of the most underfunded diseases. It is also under-diagnosed and under-treated.

My diagnosis lasted for five years.

In addition to severe headaches I get dizziness, hallucinations, dissociation, memory loss, brain resistance, confused speech and sensitivity to noise, light and weather. Sometimes I get an attack without a headache.

Self-portrait of Lydia shows the feeling of migraine (Image: Lydia Ruffles)

I saw five GPs, three neurologists, two ENT specialists, two psychotherapists, a rheumatologist and physiotherapists. I also had physical exams, MRIs, X-rays, electrocardiograms, blood tests and more than once ended up in A & E. I have been told that I may have cerebral haemorrhage, multiple sclerosis, post-viral fatigue syndrome or post-traumatic stress disorder. I also got a wrong diagnosis and took the wrong medication for a year. My experience is not unique.

When I was finally referred to the incredible team at Guy & # 39; s Hospital, I experienced first hand the transformative impact that could have great care.

New (and existing) treatments can change lives for more people, but only if we invest in getting the right diagnosis.

Approximately 200,000 people have an attack every day. Work Foundation estimates that 86 million working days have been lost to migraine for £ 8.8 billion a year in lost productivity. The direct costs for the NHS amount to approximately £ 1 billion per year.

Lake: Health

Research shows many organizations not support employees with migraine. Even with extraordinary support from my previous employer, I found working hard to navigate. It should be almost impossible without help and – for small employers in particular – a challenge to manage.

I am fortunate to be able to work flexibly now, usually at home. But what about the millions who work in offices, shops, schools and so on?

With so many days and jobs lost, not to mention a hampered career progress, funding is needed to educate and encourage employers. In the meantime, Migraine Trust has resources to help create workplaces that take migraine into account.

Migraine affects three times as many women as men. Given how often it is (more common than diabetes, epilepsy and asthma combined), I wonder if it would be better understood if men would be equally influenced.

In any case, the current financing approach seems to be a harmful short-sighted way of managing a disease that has such devastating long-term effects on individuals, employers, productivity, the NHS and the public wallet.

I am more than grateful to anyone who is in favor and treatment of people with migraine, but the urgent need for new treatment and diagnostic options can not be achieved without adequate, sustainable public funding.

Lydia Ruffles writes and talks about mental health and creativity, and is the author of The Taste of Blue Light and Color Me In.

MORE: Diabetic Ketoacidosis caused me to miss my wedding, but it turned out to be a blessing

MORE: if we celebrate the 70th anniversary of the NHS, I would like to thank you for the years that have been given to me

MORE: Why I always speak about periods on a first date


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Migraine is the third most common disease in the world: funding for treatment is crucial



Besides severe headaches, I get dizziness, hallucinations, dissociation, loss of memory, brain tone, confused speech and sensitivity to sound, light and weather (photo: Ella Byworth / Metro.co.uk)

Today is the beginning of the Migraine Awareness Week, and ones one of the 8.5 million Britons with the conditionI am happy to discuss the impact.

miniature for item ID 7897138Forming new habits is just as important as nutrition and exercise if you want to lose weight

The World Health Organization is serious about it migraine as debilitating as dementia, psychosis and quadriplegia. I have therefore spent at least 500 days in bed.

That lost time is just one reason why I am both hopeful and frustrated about the current treatment landscape and why I believe that awareness can not be a substitute for financing.

There is promising new treatment on the horizon, subject to approval for use in the NHS. Aimovig, also known as erenumab represents the first significant advance in migraine medication for 20 years and is the only medicine specifically designed to prevent this.

It could be halve the migraine days of some patients and because it is not a re-used drug, these may have fewer side effects. As someone who has received medication that has been developed for angina, high blood pressure and seizures to control my migraine, I am enthusiastic about this.

Meanwhile, good causes like Migraine Trust are invaluable to promote research and support the one in seven people who live with it. Some patients also receive excellent care – I am fortunate to be one of them now.

On the other hand, migraine is the third most common disease in the world, but there is no cure, no conclusive cause and no definitive test to make a diagnosis. Add to this the lack of understanding of the public, which extends to the work, and there is still so much to do.

Compared to its socio-economic impact, migraine is one of the most underfunded diseases. It is also under-diagnosed and under-treated.

My diagnosis lasted for five years.

In addition to severe headaches I get dizziness, hallucinations, dissociation, memory loss, brain resistance, confused speech and sensitivity to noise, light and weather. Sometimes I get an attack without a headache.

Self-portrait of Lydia shows the feeling of migraine (Image: Lydia Ruffles)

I saw five GPs, three neurologists, two ENT specialists, two psychotherapists, a rheumatologist and physiotherapists. I also had physical exams, MRIs, X-rays, electrocardiograms, blood tests and more than once ended up in A & E. I have been told that I may have cerebral haemorrhage, multiple sclerosis, post-viral fatigue syndrome or post-traumatic stress disorder. I also got a wrong diagnosis and took the wrong medication for a year. My experience is not unique.

When I was finally referred to the incredible team at Guy & # 39; s Hospital, I experienced first hand the transformative impact that could have great care.

New (and existing) treatments can change lives for more people, but only if we invest in getting the right diagnosis.

Approximately 200,000 people have an attack every day. Work Foundation estimates that 86 million working days have been lost to migraine for £ 8.8 billion a year in lost productivity. The direct costs for the NHS amount to approximately £ 1 billion per year.

Lake: Health

Research shows many organizations not support employees with migraine. Even with extraordinary support from my previous employer, I found working hard to navigate. It should be almost impossible without help and – for small employers in particular – a challenge to manage.

I am fortunate to be able to work flexibly now, mostly at home. But what about the millions who work in offices, shops, schools and so on?

With so many days and jobs lost, not to mention a hampered career progress, funding is needed to educate and encourage employers. In the meantime, Migraine Trust has resources to help create workplaces that take migraine into account.

Migraine affects three times as many women as men. Given how often it is (more common than diabetes, epilepsy and asthma combined), I wonder if it would be better understood if men would be equally influenced.

In any case, the current financing approach seems to be a harmful short-sighted way of managing a disease that has such devastating long-term effects on individuals, employers, productivity, the NHS and the public wallet.

I am more than grateful to anyone who is in favor and treatment of people with migraine, but the urgent need for new treatment and diagnostic options can not be achieved without adequate, sustainable public funding.

Lydia Ruffles writes and talks about mental health and creativity, and is the author of The Taste of Blue Light and Color Me In.

MORE: Diabetic Ketoacidosis caused me to miss my wedding, but it turned out to be a blessing

MORE: if we celebrate the 70th anniversary of the NHS, I would like to thank you for the years that have been given to me

MORE: Why I always speak about periods on a first date


Source link

Migraine is the third most common disease in the world: funding for treatment is crucial



Besides severe headaches, I get dizziness, hallucinations, dissociation, loss of memory, brain tone, confused speech and sensitivity to sound, light and weather (photo: Ella Byworth / Metro.co.uk)

Today is the beginning of the Migraine Awareness Week, and ones one of the 8.5 million Britons with the conditionI am happy to discuss the impact.

miniature for item ID 7897138Forming new habits is just as important as nutrition and exercise if you want to lose weight

The World Health Organization is serious about it migraine as debilitating as dementia, psychosis and quadriplegia. I have therefore spent at least 500 days in bed.

That lost time is just one reason why I am both hopeful and frustrated about the current treatment landscape and why I believe that awareness can not be a substitute for financing.

There is promising new treatment on the horizon, subject to approval for use in the NHS. Aimovig, also known as erenumab represents the first significant advance in migraine medication for 20 years and is the only medicine specifically designed to prevent this.

It could be halve the migraine days of some patients and because it is not a re-used drug, these may have fewer side effects. As someone who has received medication that has been developed for angina, high blood pressure and seizures to control my migraine, I am enthusiastic about this.

Meanwhile, good causes like Migraine Trust are invaluable to promote research and support the one in seven people who live with it. Some patients also receive excellent care – I am fortunate to be one of them now.

On the other hand, migraine is the third most common disease in the world, but there is no cure, no conclusive cause and no definitive test to make a diagnosis. Add to this the lack of understanding of the public, which extends to the work, and there is still so much to do.

Compared to its socio-economic impact, migraine is one of the most underfunded diseases. It is also under-diagnosed and under-treated.

My diagnosis lasted for five years.

In addition to severe headaches I get dizziness, hallucinations, dissociation, memory loss, brain resistance, confused speech and sensitivity to noise, light and weather. Sometimes I get an attack without a headache.

Self-portrait of Lydia shows the feeling of migraine (Image: Lydia Ruffles)

I saw five GPs, three neurologists, two ENT specialists, two psychotherapists, a rheumatologist and physiotherapists. I also had physical exams, MRIs, X-rays, electrocardiograms, blood tests and more than once ended up in A & E. I have been told that I may have cerebral haemorrhage, multiple sclerosis, post-viral fatigue syndrome or post-traumatic stress disorder. I also got a wrong diagnosis and took the wrong medication for a year. My experience is not unique.

When I was finally referred to the incredible team at Guy & # 39; s Hospital, I experienced first hand the transformative impact that could have great care.

New (and existing) treatments can change lives for more people, but only if we invest in getting the right diagnosis.

Approximately 200,000 people have an attack every day. Work Foundation estimates that 86 million working days have been lost to migraine for £ 8.8 billion a year in lost productivity. The direct costs for the NHS amount to approximately £ 1 billion per year.

Lake: Health

Research shows many organizations not support employees with migraine. Even with extraordinary support from my previous employer, I found working hard to navigate. It should be almost impossible without help and – for small employers in particular – a challenge to manage.

I am fortunate to be able to work flexibly now, mostly at home. But what about the millions who work in offices, shops, schools and so on?

With so many days and jobs lost, not to mention a hampered career progress, funding is needed to educate and encourage employers. In the meantime, Migraine Trust has resources to help create workplaces that take migraine into account.

Migraine affects three times as many women as men. Given how often it is (more common than diabetes, epilepsy and asthma combined), I wonder if it would be better understood if men would be equally influenced.

In any case, the current financing approach seems to be a harmful short-sighted way of managing a disease that has such devastating long-term effects on individuals, employers, productivity, the NHS and the public wallet.

I am more than grateful to anyone who is in favor and treatment of people with migraine, but the urgent need for new treatment and diagnostic options can not be achieved without adequate, sustainable public funding.

Lydia Ruffles writes and talks about mental health and creativity, and is the author of The Taste of Blue Light and Color Me In.

MORE: Diabetic Ketoacidosis caused me to miss my wedding, but it turned out to be a blessing

MORE: if we celebrate the 70th anniversary of the NHS, I would like to thank you for the years that have been given to me

MORE: Why I always speak about periods on a first date


Source link

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